Wake Up and Smell ?
I toast you all with my first sniff this morning.
Now both Star and I are sniffing, and we are working to get both our cycles in sync.
At this point, we have no actual dates, in 10 days or so we will have blood tests to see if we are both suppressed.
Maybe then ... a timeline ...
The CF screen for Star is another factor.
Glamour Nurse from my SDD’s office was not happy that Nice Nurse from the clinic was ordering up blood tests without consulting her or SDD.
Millie was right, it takes two positive carriers to create any chance of passing the CF gene on. Mr. S. is negative – so regardless of Star’s results – positive or negative – there is no issue.
BUT it is apparently clinic policy to test all donor’s – regardless.
Nice Nurse from the clinic believes she can get the results back within two weeks – and that this will not affect our cycle.
Glamour Nurse said to me that if there is any messing around, my SDD will get on the phone and blow them up and make sure the cycle starts. (He’s away this week, she says if she rings him about this, it’ll make his blood boil and since the test has already been taken and so far it doesn’t look like there will be a problem – she’s going to wait till he gets back).
Mr. S. asked me last night if there is anything he can do (since I’m in constant touch with two different nurses, taking drugs, staying in touch with Star and making sure everything is good with her, trying to figure out the logistics, when to book her flights/accommodation ... and he is doing Jacksh**!!) -
‘Yes, try and help me so I don’t have too much to worry about’
‘Ahhh, what are all the things you’re worrying about?’
‘Umm, everything’
posted by Sparkle @ 10:44 am
6 Comments:
That conversation with Mr. S. sounds all too familiar. Do they worry about nothing?
Good luck with all the coordinating- I hope it doesn't come to SDD having to throw down!
The reason all donors are tested for Cystic Fibrosis is not only to prevent passing on the disease to children (because it would take 2 carriers as parents, and even then one in four children would have the disease). Instead, it is to prevent a condition that some men who are carriers of the CF mutation have, and that makes them infertile. It's called CBAVD, which stands for "congenital bilateral absence of the vas deferens." And even if only one of the genetic parents was a carrier -- say, Star -- there is a 50% chance that a child would also be a carrier. And if the kid was a boy, there is a chance that he would have this condition.
I've had to learn this for the same reason as you, and I also did not see the purpose of testing a donor when we knew that the other genetic contributor was not a carrier. But now that I know, I'm happy to have it done. The clinics obviously prefer to test because they see many cases of men with CBAVD who have come in for fertility issues, and they're trying to solve the problem "at the source."
If it turns out that Star is a carrier, that does not mean that everything stops. It means that you would have to do PGD on the embryos, and chose the unaffected ones.
Although at this stage in the game every test feels like a potential roadblock, this is a good one. It is also information that may be useful to Star in her future reproductive life.
I'll keep following. Like many, I'm hoping awfully much.
Wow sparkle, it's been a while since I was here but I see that things are really moving. Happy sniffing and hope it all goes smoothly.
At least Mr. S offered. I'm still waiting. :-/
Glamour nurse sounds great.
I am so excited that you are moving along with this cycle. I hope that it all goes smoothly.
Yes, I think I've been in that same conversation with my hubby before. I guess he means well, but at least for me, I have to feel control, so even though I might want to I probably am not capable of giving him some of my cycle-related to-dos.
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